I'm exhausted, but I'll try to make this update as informative as possible. I thought that I was superwoman, evidently, and tacked on a huge appointment with an endo specialist at the end of an amazing weekend visiting one of my very best friends. We Just Dance-d, we coffee-d, we slept, we winery-ed, and we movie-d to our hearts' content. But Monday afternoon I sat in a very plush office and awaited the very specialized expertise of a very knowledgeable doctor and spent three hours learning, in his opinion, what I am up against.
His diagnosis was one hundred eighty degrees different from what the last doctor gave me. Truth be told, he almost missed it. And as he stood next to the exam table explaining to me what he thought was wrong, a lightbulb went off, as they say, and he actually went back and redid his exam before delivering the rather heavy news. He believes I do not, in fact, have andenomyosis, but that I do have a very seriously advanced case of endometriosis.
I couldn't help but laugh, really, as he said to me, "I was nice to meet you, Abigail. You are a very unusual case." I smirked and replied, "What's new." Because really, I'm like a medical anomaly. My hypothyroidism defies "typical" lab work and conventional diagnosis. I have Meniere's Disease, which is a ridiculously debilitating inner ear disorder which randomly, and without warning, makes life into the world's worst tilt-a-whirl ride. And now, I have an "usual case" of endometriosis that a doctor, who is world-renowned in his ability, whom people come to see FROM OTHER COUNTRIES, almost missed.
Yay me.
Kinda.
Not really.
Immediately, I was reminded of Glennon Doyle Melton at Momastery and her post in which she shared the experience of her doctor calling to inform her of her Lyme Disease and the accompanying rare and life threatening parasite destroying her body. She makes reference, completely in jest, to being "special" and that's why God chooses her for these challenges. I have to say, I completely agree.
I am special.
The end outcome is somewhat hazy. And depending on which procedures I choose, I'm weighing the possibility of needing surgery again down the road or losing my ability to carry a child ever again. Surgery is a necessity if I want to increase my quality of life. Very expensive surgery. Which means while I am eager to feel better, my decision making will be financially prudent and not a knee-jerk reaction. I will be seeking the opinion of one more doctor before I start moving forward on anything.
I'd love to hear from other Endo Warriors out there. I'm new to all of this. I'm all about absorbing and receiving right now. Share your story. Too many of us have been silent for too many years. We need to speak up. We need to eradicate the shame and embarrassment associated with female reproductive health.
His diagnosis was one hundred eighty degrees different from what the last doctor gave me. Truth be told, he almost missed it. And as he stood next to the exam table explaining to me what he thought was wrong, a lightbulb went off, as they say, and he actually went back and redid his exam before delivering the rather heavy news. He believes I do not, in fact, have andenomyosis, but that I do have a very seriously advanced case of endometriosis.
I couldn't help but laugh, really, as he said to me, "I was nice to meet you, Abigail. You are a very unusual case." I smirked and replied, "What's new." Because really, I'm like a medical anomaly. My hypothyroidism defies "typical" lab work and conventional diagnosis. I have Meniere's Disease, which is a ridiculously debilitating inner ear disorder which randomly, and without warning, makes life into the world's worst tilt-a-whirl ride. And now, I have an "usual case" of endometriosis that a doctor, who is world-renowned in his ability, whom people come to see FROM OTHER COUNTRIES, almost missed.
Yay me.
Kinda.
Not really.
Immediately, I was reminded of Glennon Doyle Melton at Momastery and her post in which she shared the experience of her doctor calling to inform her of her Lyme Disease and the accompanying rare and life threatening parasite destroying her body. She makes reference, completely in jest, to being "special" and that's why God chooses her for these challenges. I have to say, I completely agree.
I am special.
The end outcome is somewhat hazy. And depending on which procedures I choose, I'm weighing the possibility of needing surgery again down the road or losing my ability to carry a child ever again. Surgery is a necessity if I want to increase my quality of life. Very expensive surgery. Which means while I am eager to feel better, my decision making will be financially prudent and not a knee-jerk reaction. I will be seeking the opinion of one more doctor before I start moving forward on anything.
I'd love to hear from other Endo Warriors out there. I'm new to all of this. I'm all about absorbing and receiving right now. Share your story. Too many of us have been silent for too many years. We need to speak up. We need to eradicate the shame and embarrassment associated with female reproductive health.